Patient/Caregiver Reported Outcomes (PCRO) Core

Bennett, Antonia – PhD
Credentials: PhD
Role:

Executive Committee, Patient/Caregiver Reported Outcomes (PCRO) Core

Primary title: Associate Professor, Department of Health Policy and Management
Primary Institution: University of North Carolina
Complete Titles:

Associate Professor, Department of Health Policy and Management, University of North Carolina

Bio: Antonia Bennett, PhD is a patient-reported outcomes methodologist and health services researcher. Her research investigates valid and reliable approaches for assessing patient-reported outcomes in longitudinal studies, in particular symptoms, physical function and quality of life. Currently, her research is focused on the use of patient-reported outcome measures in patient populations where dementia may be present. The objective is to determine at what level of cognitive impairment can patients no longer provide valid and reliable responses. Dr. Bennett is a Director of the Measurement Core of the NINR-supported Palliative Care Research Cooperative. She is also investigating the potential value of activity trackers and other wearable device data in clinical trials and clinical care. Dr. Bennett is Faculty Director of the UNC Patient-Reported Outcomes Core (PRO Core), which provides consultation and software for administering PRO studies.
Hanson, Laura – MD, MPH
Credentials: MD, MPH
Role:

Core Leader, Patient/Caregiver Reported Outcomes (PCRO) Core
Member, Steering Committee

Primary title: Professor, Division of Geriatric Medicine and Director, UNC Palliative Care Program
Primary Institution: University of North Carolina School of Medicine
Complete Titles:

Professor, Division of Geriatric Medicine
Director, UNC Palliative Care Program, University of North Carolina School of Medicine

Bio: Laura Hanson, MD, MPH is a tenured professor in the Division of Geriatric Medicine, Department of Medicine, University of North Carolina, Chapel Hill and Director of the UNC Palliative Care Program. As a board-certified physician in internal medicine, geriatric medicine, and hospice and palliative medicine, she provides care for frail and medically complex older patients, and adults of all ages with serious and potentially life-limiting illness. Dr. Hanson leads a research program to understand, measure and improve quality of palliative care for people living with late-stage AD/ADRD, nursing home residents and other vulnerable populations. As lead clinical investigator on the PEACE Project, she helped develop and test clinical palliative care quality measures, now endorsed by the National Quality Forum and applied nationwide in hospice care. She has been the principal investigator/co-investigator for numerous real-world and pragmatic clinical trials to improve nursing home dementia care, including two NIH-NIA funded randomized clinical trials of decision aids for family caregivers of people living with advanced dementia, and serves as site-based principal investigator for the Measurement Core, Palliative Care Research Cooperative group.
Kelley, Amy – MD, MSHS
Credentials: MD, MSHS
Role:

Executive Committee, Patient/Caregiver Reported Outcomes (PCRO) Core

Primary title: Vice Chair for Health Policy and Faculty Development, Brookdale Department Geriatrics & Palliative Medicine
Primary Institution: Icahn School of Medicine at Mount Sinai
Complete Titles:

Vice Chair for Health Policy and Faculty Development, Brookdale Department Geriatrics & Palliative Medicine, Icahn School of Medicine at Mount Sinai
Staff Physician, Geriatric Research Education and Clinical Centers, James J Peters VA Medical Center, Bronx, NY

Bio: Amy S. Kelley, MD, MSHS, is associate professor and vice chair for health policy and faculty development, and Hermann Merkin professor in palliative care in the Brookdale Department of Geriatrics and Palliative Medicine, Icahn School of Medicine at Mount Sinai in New York. Dr. Kelley’s research bridges geriatrics and palliative medicine by focusing on the needs of seriously ill older adults and their families. She has extensive experience using the nationally-representative, longitudinal Health and Retirement Study (HRS) and National Health and Aging Trends Study (NHATS), both linked with Medicare claims data, to examine factors associated with treatment intensity among older people living with dementia and other serious illnesses. Her work has demonstrated that only 11% of the highest-cost patients are in the last year of life, supporting the need to prospectively identify those older adults, who are at greatest risk for high healthcare costs and may have unmet care needs.
Ritchie, Christine – MD, MSPH
Credentials: MD, MSPH
Role:

Executive Committee, Patient/Cargiver Reported Outcomes (PCRO) Core
Member, Steering Committee

Primary title: Professor of Medicine
Primary Institution: Massachusetts General Hospital Mongan Institute
Complete Titles:

Professor of Medicine, Harvard Medical School, Massachusetts General Hospital (MGH)
Minaker Chair in Geriatrics, Director of Research, Division of Palliative Care and Geriatric Medicine, MGH

Bio: Christine Ritchie, MD, MSPH, is the Minaker chair in geriatrics and Director of Research in the Division of Palliative Care and Geriatric Medicine at Massachusetts General Hospital (MGH) in Boston. She will be establishing a Center for Aging and Serious Illness Research at MGH, designed to bring together researchers to improve the well-being of older adults and enhancing the lived experience of those with advanced illnesses. A graduate of Davidson College and the University of North Carolina at Chapel Hill School of Medicine, she completed her internal medicine residency, chief residency and geriatric fellowship at the University of Alabama at Birmingham (UAB). She is a board-certified geriatrician and palliative care physician with research focused on optimal clinical care for those with advanced illness, including advanced dementia. Dr. Ritchie co-chairs the NIH-funded Palliative Care Research Cooperative and co-directs the National Home-based Primary Care and Palliative Care Research Consortium.
Saliba, Debra – MD, MPH
Credentials: MD, MPH
Role:

Executive Committee, Patient/Caregiver Reported Outcomes (PCRO) Core

Primary title: Anna and Harry Borun Endowed Chair in Geriatrics and Gerontology
Primary Institution: UCLA
Complete Titles:

Anna and Harry Borun Endowed Chair in Geriatrics and Gerontology at UCLA
Director, UCLA/JH Borun Center for Gerontological Research
Associate Director for Education, VA Los Angeles HSR&D Center of Innovation
Senior Natural Scientist, RAND Corporation

Bio: Debra Saliba, MD, MPH holds the UCLA Anna & Harry Borun Endowed Chair in Geriatrics, is a physician researcher at VA GRECC and HSR&D Center of Innovation, and RAND senior natural scientist. Her research aims to improve quality of care for vulnerable older adults and adults with long-term care needs. Including direct inclusion of older adults in assessments of their health and needs. She developed the VES-13, a function-based survey that identifies at-risk older adults, that has gained widespread acceptance as both a predictor and outcome measure. As PI for the CMS MDS 3.0 Revision project and VA Validation project, she led a national consortium in mixed-methods research to identify and test revised items, including many that relied on residents’ self-report. This research showed significant gains in reliability, validity, staff satisfaction and assessment efficiency. She serves on CMS’s 5-star Technical Expert Panel and National Quality Forum’s committees on Patient Experience and Function and Post-acute /Long-term care. She is past President of the American Geriatrics Society (AGS) and serves as Deputy Editor for the Journal of AGS.
Teno, Joan – MD, MS
Credentials: MD, MS
Role:

Executive Committee, Stakeholder Engagement Team

Primary title: Professor of Medicine
Primary Institution: Oregon Health Sciences University
Complete Titles:

Professor of Medicine, Oregon Health & Science University
Adjunct Professor of Health Services, Policy, and Research, Brown University School of Public Health

Bio: Joan M. Teno, MD, MS is a physician health services researcher with over 25 years of experience conducting research that has impacted end-of-life care in the US. She is a board-certified internist with added qualifications in geriatrics, hospice, and palliative medicine. Dr. Teno was a hospice medical Director for 18 years. She is currently the project leader of a program project grant studying attending physician staff for people with multimorbidity, investigator on the Centers for Medicare and Medicaid Services (CMS) contract on creating the Consumer Assessment of Healthcare Providers and Systems (CAHPS) Hospice Survey and clinical lead in the development of hospice assessment tool. Throughout Dr. Teno’s career, she has been one of the leaders in defining and operationalizing how we measure the quality of care for those who are dying through bereaved family member surveys and use of administrative data.
Zimmerman, Sheryl – PhD
Credentials: PhD
Role:

Executive Committee, Patient/Caregiver Reported Outcomes (PCRO) Core

Primary title: University Distinguished Professor and Co-Director, Program on Aging, Disability, and Long-Term Care, Cecil G. Sheps Center for Health Services Research
Primary Institution: University of North Carolina at Chapel Hill
Complete Titles:

University Distinguished Professor and Co-Director, Program on Aging, Disability, and Long-Term Care, Cecil G. Sheps Center for Health Services Research, University of North Carolina at Chapel Hill

Bio: Sheryl Zimmerman, PhD is a University Distinguished Professor of Social Work and Public Health, and for more than 20 years has been Co-Director of the Program on Aging, Disability, and Long-Term Care, Cecil G. Sheps Center for Health Services Research, University of North Carolina at Chapel Hill. She is internationally recognized as a leader in research related to care for people living with dementia, having published 350 peer-reviewed articles and numerous books, and currently serving as co-editor-in-chief of JAMDA – the Journal of Post-Acute and Long-Term Care Medicine. In 1996, Zimmerman founded the Collaborative Studies of Long-Term Care, the largest ongoing research consortium of almost 1,500 nursing home and assisted living settings that have participated in more than 70 projects with continuous funding from the NIH, AHRQ, and foundations. Dr. Zimmerman works closely with long-term care providers and provider organizations, including with the Alzheimer’s Association to develop their 2018 Dementia Care Practice Recommendations.