We are excited to share information about the Long-Term Care (LTC) Data Cooperative, and invite you to check out the website to learn more. Led by American Health Care Association (AHCA), the LTC Data Cooperative is an outgrowth of work led by Vince Mor, PhD in response to COVID-19. This initiative brings together healthcare systems and data management resources to create the largest integrated database of detailed, normalized, electronic health record (EHR) data from nursing homes (NH) in the United States. The EHR data can also be linked to Medicare claims data.
The LTC Data Cooperative’s comprehensive data set will facilitate researchers’ ability to test the impact of treatments and other interventions intended to better the lives of NH residents through observational studies and pragmatic clinical trials. This will enable researchers to generate real-world evidence on the effectiveness of different treatments and care practices for older adults, individuals with disabilities, and people living with dementia in nursing homes.
In addition, the LTC Data Cooperative will serve four broad functions:
- Assist providers with health care operations, including care coordination for residents who transfer between skilled nursing facilities
- Support public health monitoring for medical conditions and infections, including COVID-19
- Enable observational studies of the LTC population, ranging from policy evaluations to epidemiological studies to pharmaco-epidemiological studies
- Facilitate provider and patient recruitment into clinical research studies, including stage 3 and 4 embedded pragmatic clinical trials
Vincent Mor, PhD, reflects that “Thirty years ago, the minimum data set made it possible to characterize the needs of nursing home residents and to document the impact of new treatments and policies. This initiative transforms this effort by linking ‘real-time’ clinical data, including lab results and orders, in ways that can transform the delivery of care to the increasingly vulnerable population of nursing home residents.”
Questions?
Email us with questions or to learn more: LTCDataCooperative@AHCA.org