Reports and Guidance Documents
The IMPACT Collaboratory is committed to providing reports and guidance documents that elaborate on best practices for conducting pragmatic clinical trials embedded within healthcare systems for people living with dementia and their care partners. The products below have been created by various IMPACT Cores and Teams to support this mission.
- The IMPACT Collaboratory Lived Experience Panel: Reflections on Accomplishments and Recommendations for Continued Work
- The 2023-2024 Lived Experience Panel Report: Perspectives on Evaluating and Measuring Goal-Concordant Care for People Living with Dementia
- Guidance for Proxy Data and Dyadic Analysis
- CAPRA Data Brief | health care use patterns among older adults with dementia
- The 2022-2023 Lived Experience Panel Report, Voices of the Lived Experience Panel: Health Equity in Dementia Care and Research (English/Spanish)
- The 2021-2022 Lived Experience Panel Report: Ethical Challenges in Conducting Research Using a Waiver of Informed Consent with People Living with Dementia
- The 2021-2022 Lived Experience Panel Report: Priorities for Person and Caregiver Relevant Outcomes in Dementia Intervention Research
- Best Practices for Integrating Health Equity into Embedded Pragmatic Clinical Trials for Dementia
- Creating Effective Value Propositions: Engaging key stakeholders in embedded pragmatic clinical trials (ePCTs) to evaluate evidence based programs in dementia care
- Stakeholder Perspectives: Engaging and Working Effectively with Individuals Living with Dementia as Stakeholder Advisors and Research Partners
