August 18, 2022
Authors: Emily Largent, PhD, JD, RN, Jason Karlawish, MD Steve Joffe, MD, MPH, Gary Epstein-Lubow, MD
Description: This report documents the insights gained from two meetings between members of IMPACT’s Ethics and Regulation Core and the Lived Experience Panel, featuring conversations regarding the ethical challenges related to conducting embedded pragmatic clinical trials among people living with dementia and their care partners using waivers of informed consent.
Citation: Largent E, Karlawish J, Joffe S, Epstein-Lubow G. The 2021-2022 Lived Experience Panel Report: Ethical Challenges in Conducting Research Using a Waiver of Informed Consent with People Living with Dementia. NIA IMPACT Collaboratory; 2022. doi: doi.org/10.58234/92591162
Click to view LEP Report | Ethics & Regulation