Public Attitudes toward Consent When Research Is Integrated into Care—Any “Ought” from All the “Is”?
April 11, 2021
Emily Largent, JD, PhD, RN, Associate Core Leader of the IMPACT Ethics and Regulation Core, recently co-authored a journal article in The Hastings Center Report addressing public address towards consent in pragmatic research. The authors recommend prioritizing data about what people consider acceptable with respect to consent for pragmatic research and data about people’s informed, rather than initial, preferences on this subject. In addition, they advise caution regarding the weight given to majority viewpoints and identify circumstances when empirical data can be overridden.