Engaging Partners Team
Team Activities
The Engaging Partners Team focuses on engaging community partners – including patients, care partners, and other interested parties - in all aspects of the development and conduct of embedded pragmatic clinical trials (ePCTs) among people living with dementia and their care partners.
Team members develop and disseminate guidance and training materials on engaging community partners in the conduct of ePCTs, and support IMPACT investigators on strategies for meaningful engagement of community partners throughout the research lifecycle. The Engaging Partners Team coordinates community partner input to setting-specific Health Care System Launchpads and engages PLWD and care partners as reviewers to evaluate proposals to IMPACT's pilot study program.
What is the Community Review Panel?
The Community Review Panel is a diverse community of people living with dementia or caring for people living with dementia who help make decisions about which research applications are recommended for funding by the IMPACT Collaboratory to the National Institute of Aging.
What does the Community Review Panel do?
The Community Review Panel ensures that research to improve dementia care matters to people living with dementia and care partners. Members are asked to review proposals and answer the following types of questions:
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Is this research important?
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Does this research address an unmet need for people living with dementia and care partners?
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Will this research make a difference in the real-world for people living with dementia, care partners, and health care systems?
Key Resources
- The IMPACT Collaboratory Lived Experience Panel: Reflections on Accomplishments and Recommendations for Continued Work
- Partnering with People Living with Dementia and Care Partners in Embedded Pragmatic Clinical Trials
- Stakeholder Perspectives: Engaging and Working Effectively with Individuals Living with Dementia as Stakeholder Advisors and Research Partners
News & Publications
- IMPACT Engaging Partners Team describes the movement away from use of the word stakeholder in new publication
- IMPACT member Gary Epstein-Lubow awarded grant to support providers within CMS’s new evidence-based dementia care model
- New article highlights how IMPACT Lived Experience Panel contributes to improving ePCTs in dementia care
- National collaboratory seeks candidates for mentorship program to improve care for older adults at risk of elder mistreatment
- Two IMPACT members tapped for National Center advisory board
- IMPACT physicians contribute to Health Affairs article addressing costs of dementia care
- Travers, Gifford and Baier co-author qualitative study on providers’ perspectives on high-quality dementia care
