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IMPACT researchers explore approaches to dementia caregiver identification and recruitment

How Do Researchers Identify and Recruit Dementia Caregivers? A Scoping Review

February 5, 2025

IMPACT Health Care Systems Core members, Leah Hanson, PhD, Bhavani Kashyap, MBBS, PhD, Bethany Crouse, PhD, and Rachel Hays, MPH, and IMPACT HCS Core faculty scholars, Beth Fields, PhD, Alyssa Aguirre, MSW, LCSW, Talha Ali, PhD, Xiaojuan Li, PhD, and are among the researchers that conducted this scoping review of current methodologies for identifying and recruiting dementia caregivers in clinical studies.

A total of 148 articles were included in the review. The most common method for identification was community outreach, and paper advertisements for recruitment. Caregivers were most often approached in community settings, formal organizations, and/or dementia research centers. Most enrolled caregivers were female, White, and spouses of people living with dementia. Race and ethnicity were underreported, as were the target recruitment goals.

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