Patient & Caregiver Relevant Outcomes Core
Core Activities
The Patient and Caregiver Relevant Outcomes (PCRO) Core focuses on developing and supporting use of PCROs pertaining to people living with dementia (PLWD) and their care partners in the design and conduct of embedded pragmatic clinical trials (ePCTs).
Core members have developed an online library of Clinical Outcome Assessments (COAs) relevant to conducting ePCTs, including patient-reported, caregiver-reported, observer-reported, performance, and clinical-reported outcomes. They define and disseminate best practices for collecting COAs from electronic health records and provide guidance to investigators on selecting and measuring different types of COAs and their suitability for pragmatic trials.
Key Resources
News
- Hanson will assist new Science Advisor at American Academy of Hospice and Palliative Medicine
- New article highlights how IMPACT Lived Experience Panel contributes to improving ePCTs in dementia care
- IMPACT members publish article on evaluating the pragmatic characteristics of advance care planning outcome measures in dementia clinical trials
- IMPACT members share approaches to promote health equity in pragmatic trials in ADRD
- IMPACT members demonstrate impact of dementia care training on nurse care managers’ interactions with family caregivers
Leadership
 Laura Hanson, MD, MPH |
Members of the PCRO Core, 2024 Annual Business Meeting
Learn more about the Lived Experience Panel