Core Activities

The Patient and Caregiver Relevant Outcomes (PCRO) Core focuses on supporting the design and conduct of ePCTs by guiding investigators in use of outcomes that are both pragmatic and relevant to people living with dementia (PLWD) and their care partners.

Core members have expertise in established and emerging methods to measure outcomes using administrative data, clinical assessments, and data embedded in electronic health records.  The PCRO Core curates an online library of outcome measures relevant to conducting ePCTs. They provide guidance and consultation to investigators selecting outcomes for ADRD ePCTs, enhance investigator capacity through training and other resources, and describe and disseminate novel methods to address gaps in measurement and data capture for outcomes that matter to PLWD and their care partners.