Introducing the 2023-2024 Lived Experience Panel Report: Perspectives on Evaluating and Measuring Goal-Concordant Care for People Living with Dementia by IMPACT and LEP members including Joshua Niznik, Antonia Bennett, Natalie C. Ernecoff, Sheryl Zimmerman, Kathryn Wessell, Laura Hanson, Gary Epstein-Lubow, Carolyn Malone, Willetha Barnette, Bart Brammer, Katie Brandt, Roberta Cruz, Monica Downer, Darrell Foss, LuPita Gutierrez-Parker, Freddye G. James, Judith S. Rocha, Anthony Wagner.

The report describes the insights and lessons learned from a series of 3 meetings between the IMPACT Lived Experience Panel and members of the Patient and Caregiver Relevant Outcomes Core.  The topic of discussion was goal-concordant care as it occurs in the real world and as it is measured in research. Panel members discussed their experiences talking about their goals of care with their healthcare providers and how thinking about their goals could help them make healthcare decisions.   Discussions unveiled some surprising discordance between panel members’ experiences and researcher expectations, which resulted in a series of challenges and recommendations for future efforts.

Read the full report to learn more!