Introducing the 2023-2024 Lived Experience Panel Report: Perspectives on Evaluating and Measuring Goal-Concordant Care for People Living with Dementia by IMPACT and LEP members including Joshua Niznik, Antonia Bennett, Natalie C. Ernecoff, Sheryl Zimmerman, Kathryn Wessell, Laura Hanson, Gary Epstein-Lubow, Carolyn Malone, Willetha Barnette, Bart Brammer, Katie Brandt, Roberta Cruz, Monica Downer, Darrell Foss, LuPita ...

Supporting Mealtime Participation Among People Living With Dementia at Home: Challenges and Strategies for Caregivers July 1, 2024 Career Development Awardee Lisa Juckett, PhD, OTR/L, CHT published details of recent study, which characterized barriers to mealtime participation among people living with dementia and identified potential caregiver-led strategies to enhance mealtime activities. The research team used a qualitative ...

Emotion regulation in people living with dementia and their spouses: the role of neuropsychiatric symptoms June 28, 2024 IMPACT research fellow Yifan Lou, PhD, MSW and Design and Statistics Core member Joan Monin, PhD, MS are among the authors of a new article describing a recent study investigating whether there is self-awareness in people living with dementia ...

Pragmatic Clinical Trials for Dementia Care: Experience from the First 5 Years of the IMPACT Collaboratory June 26, 2024 Authors: Jill Harrison PhD, Susan L. Mitchell MD, MPH, Ellen P. McCarthy PhD, MPH, Vincent Mor PhD The authors reflect on the first 5 years of IMPACT Collaboratory as a national infrastructure and resource dedicated to transforming dementia care ...

The Ethical Value of Consulting Community Members in Non-Emergency Trials Conducted with Waivers of Informed Consent for Research June 25, 2024 IMPACT Ethics and Regulation Core members Emily Largent, PhD, JD and Steve Joffe, MD, MPH are authors on a recent article using examples from actual PCTs to argue that prospective consultation with representatives of the target ...

Leah Hanson, PhD, Heather Allore, PhD, and Yaideliz Romero-Ramos, MPH, will present during the AAIC 24 Conference held online and in Philadelphia, Pennsylvania, July 28 through August 1, 2024. Dr. Leah Hanson will share details about her IMPACT-funded research in her poster presentation: A Pilot Pragmatic Trial of Mindfulness Based Dementia Care for Care Partners on July 30 ...

IMPACT members Rafael Samper-Ternent, MD, PhD and Susan Mitchell, MD, MPH are primary authors in the recently published Original Report: Pragmatic Trials Among Older Adults by the publication Ethnicity & Disease. The articles provide best practices for health equity in embedded pragmatic clinical trials(ePCTs) for dementia care. Considerations When Designing and Implementing Pragmatic Clinical Trials That ...

Modifications of the Readiness Assessment for Pragmatic Trials tool for appropriate use with Indigenous populations  May 31, 2024 This article by Joanna Hikaka, PhD  and IMPACT members Ellen McCreedy, PhD, MPH, Eric Jutkowitz, PhD, Ellen McCarthy, PhD, MPH, and Rosa Baier, MPH,  describes efforts to identify adaptations necessary for the use of the ‘Readiness Assessment for Pragmatic ...

A comparison of dementia diagnoses and cognitive function measures in Medicare claims and the Minimum Data Set May 30, 2024 IMPACT Patient and Caregiver Relevant Outcomes (PCRO) Core members Joshua Niznik, PharmD, PhD and Laura Hanson, MD, MPH are authors on article that describes a study which addresses a critical methodological gap regarding the reliable identification of ...

Maintaining the validity of inference from linear mixed models in stepped-wedge cluster randomized trials under misspecified random-effects structures May 29, 2024 IMPACT members, Monica Taljaard, PhD and Fan Li, PhD are among the authors of a new article which describes the value of using variance estimators to circumvent challenges in specifying random effects in research using ...