Patient & Caregiver Reported Outcomes Core

Patient & Caregiver Reported Outcomes Core

The Patient and Caregiver Reported Outcomes (PRCO) Core focuses on developing and supporting use of PCROs relevant to people living with dementia (PLWD) and their care partners in the design and conduct of ePCTs.

Core Leader

Core Activities

  • Synthesizes evidence and creates a library of Clinical Outcome Assessments (COAs), relevant to conducting ePCTs among PLWD and their caregivers/care partners, including: patient-reported, caregiver-reported, observer-reported, performance, and clinician-reported outcomes.
  • Defines and disseminates best practices for collecting COAs from electronic health records, registries, and administrative databases in collaboration with the Technical and Data Core for ePCTs among PLWD and their care partners.
  • Provides guidance and consultation to investigators on measuring and applying COAs in the design and conduct of ePCTs among PLWD and their care partners.

Executive Committee