Patient/Caregiver Relevant Outcomes (PCRO) Core

Carpenter, Joan – Profile
Full Name
Joan Carpenter, PhD, CRNP, ACHPN, FPCN
Credentials
PhD, CRNP, ACHPN, FPCN
Role

Executive Committee, PCRO Core
Pilot Grant Awardee, Cycle 2A

Ernecoff, Natalie – Profile
Full Name
Natalie Ernecoff, PhD, MPH
Credentials
PhD, MPH
Role

Executive Committee
Patient/Caregiver Relevant Outcomes (PCRO) Core

Primary title
Associate policy researcher
Primary Institution
RAND Corporation
Complete Titles

Associate policy researcher, RAND Corporation

Bio
Natalie Ernecoff, PhD, MPH, is an associate policy researcher at the RAND Corporation. Her research focuses on developing, implementing, and evaluating systems-level palliative care, hospice, and home care interventions. Her work includes healthcare system informatics, electronic health record (EHR)-based interventions, systematic identification of serious illness populations, and collaborative models of palliative care delivery. She is experienced in qualitative and mixed methods research, implementation science, population health management, program evaluation, and clinical research. Dr. Ernecoff leads work exploring measures of goal-concordant care based upon both coded and free text data in nursing home EHRs.
Green, Ariel – Profile
Full Name
Ariel Green
Credentials
MD, PhD, MPH
Role

Steering Committee, Demonstration Project Awardee, Cycle 3, Member, Patient/Caregiver Relevant Outcomes Core (PCRO)

Primary title
Assistant Professor of Medicine, Division of Geriatric Medicine and Gerontology
Primary Institution
Johns Hopkins University School of Medicine
Complete Titles

Assistant professor of medicine in the Division of Geriatric Medicine and Gerontology at the Johns Hopkins University School of Medicine

Bio
Ariel Green, MD, PhD, MPH is an assistant professor of medicine in the Division of Geriatric Medicine and Gerontology at the Johns Hopkins University School of Medicine. Her research focuses on improving communication between older adults, care partners and health care professionals about unnecessary and potentially harmful interventions, including medication use. As a member of the American Geriatrics Society (AGS) Clinical Practice Committee, Dr. Green co-wrote the Society’s recommendations for Choosing Wisely, a national initiative that promotes patient-physician conversations about unnecessary medical tests and procedures. Dr. Green received the AGS Choosing Wisely Champion Award for leading efforts to reduce overuse in medicine. Her research, supported by the NIA, is evaluating the impact on patient and care partner outcomes of pragmatic interventions to optimize prescribing for older adults with dementia in primary care. A former award-winning health journalist, Dr. Green has published personal essays and op-eds in Annals of Internal Medicine, The Washington Post, and The New York Times, among other publications.
Hanson, Laura – Profile
Full Name
Laura Hanson, MD, MPH
Credentials
MD, MPH
Role

Core Leader
Patient/Caregiver Relevant Outcomes (PCRO) Core

Primary title
Professor, Division of Geriatric Medicine and Director, UNC Palliative Care Program
Primary Institution
University of North Carolina School of Medicine
Complete Titles

Professor, Division of Geriatric Medicine
Director, UNC Palliative Care Program, University of North Carolina School of Medicine

Bio
Laura C. Hanson, MD, MPH, is a tenured professor in the Division of Geriatric Medicine, Department of Medicine, The University of North Carolina (UNC) at Chapel Hill and director of the UNC Palliative Care Program. As a board-certified physician in internal medicine, geriatric medicine, and hospice and palliative medicine, she provides care for frail and medically complex older patients, and adults of all ages with serious and potentially life-limiting illness. Dr. Hanson leads a research program to measure and improve quality of palliative care for people living with late-stage AD/ADRD, nursing home residents and other vulnerable populations. She leads the Measurement Core for the NINR-funded Palliative Care Research Cooperative group, and has developed quality measures endorsed by the National Quality Forum and applied nationwide in hospice care. Her recent research focuses on AD/ADRD clinical trials to improve shared decision-making and palliative care outcomes.
Lum, Hillary – Profile
Full Name
Hillary Lum, MD, PhD
Credentials
MD, PhD
Role

Executive Committee
Patient/Caregiver Relevant Outcomes (PCRO) Core

Primary title
Professor of Medicine, Associate Division Head, Division of Geriatric Medicine, Department of Medicine
Primary Institution
University of Colorado School of Medicine
Complete Titles

Professor of Medicine with tenure
Associate Division Head, Division of Geriatric Medicine, Department of Medicine
Director - Training, Education, and Mentorship (TEaM) Core, Adult and Child Center for Outcomes Research and Delivery Science (ACCORDS)
Co-Director - CCTSI Clinical Faculty Scholars Program
Co-Director - Palliative Care and Aging Research Fellowship T32

Bio
Hillary Lum, MD, PhD, is a geriatrician and palliative care physician who is passionate about designing, testing, and implementing pragmatic interventions for older adults with serious illness, including mild cognitive impairment and dementia, and family care partners. She is professor of medicine in the Division of Geriatric Medicine at the University of Colorado School of Medicine. She did her MD/PhD at University of Wisconsin-Madison and internal medicine residency at University of Pittsburgh Medical Center. As a 2016 NIA Beeson Scholar, Dr. Lum designed and demonstrated the efficacy of a novel advance care planning group visit intervention for older adults in primary care, and studied adaptation for individuals with mild cognitive impairment and their care partners. In 2021, she was one of the inaugural NIA IMPACT Collaboratory Health Care System Scholars. Her research focuses on community engagement, pragmatic interventions through the patient portal, and implementation science. She is part of the IMPACT Collaboratory Patient and Caregiver-relevant Outcomes Core.
Link to Niznik, Joshua profile page.
Full Name
Joshua Niznik, PharmD, PhD
Credentials
PharmD, PhD
Role

Executive Committee, Patient/Caregiver Relevant Outcomes (PCRO) Core

Link to Ritchie, Christine profile page.
Full Name
Christine Ritchie, MD, MSPH
Credentials
MD, MSPH
Role

Executive Committee, Patient/Cargiver Relevant Outcomes (PCRO) Core
Member, Steering Committee

Link to Saliba, Debra profile page.
Full Name
Debra Saliba, MD, MPH
Credentials
MD, MPH
Role

Executive Committee, Patient/Caregiver Relevant Outcomes (PCRO) Core

Link to Wessell, Kathryn profile page.
Full Name
Kathryn Wessell, MPH
Credentials
MPH
Role

Core Navigator
Patient/Caregiver Relevant Outcomes (PCRO) Core

Primary title
Research Associate
Primary Institution
University of North Carolina at Chapel Hill
Complete Titles

Research Associate, University of North Carolina at Chapel Hill
Project Manager

Bio
Kathryn Wessell, MPH, is a project manager with 20 years of experience in health services research. She serves as the core navigator for the Patient/Caregiver Relevant Outcomes (PCRO) Core. Ms. Wessell has contributed to numerous studies aimed at improving the quality of care for people living with advanced illness, including Alzheimer’s disease and Alzheimer’s disease related dementias (AD/ADRD). She significantly contributed to the development of the PCRO iLibraries of high-quality outcome assessments relevant to pragmatic AD/ADRD research.
Link to Zimmerman, Sheryl profile page.
Full Name
Sheryl Zimmerman, PhD
Credentials
PhD
Role

Executive Committee, Patient/Caregiver Relevant Outcomes (PCRO) Core