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Meeting the Challenge of Caring for Persons Living with Dementia and Their Care Partners and Caregivers – A Way Forward

Posted on by Erin Luers

The Mission Moment for the 2024 IMPACT Annual Business Meeting was provided by the distinguished Eric Larson, MD, MPH, a professor at University of Washington, retired executive director of Kaiser Permanente Washington Health Research Institute and vice president for research and healthcare innovation at Kaiser Foundation Health Plan of Washington, and former Leader of IMPACT’s Health Care Systems Core. Dr. Larson began by reminding the group about how far the field has come in the last 60 years and called on researchers and healthcare providers to follow the Guiding Principles for Dementia Care, as described in "Meeting the Challenge of Caring for Persons Living with Dementia and Their Care Partners and Caregivers – A Way Forward" released in February 2021 from the National Academies of Sciences, Engineering and Medicine. These principles include:

  • person-centeredness
  • promotion of well-being
  • attention to each person’s needs with respect and dignity
  • justice
  • racial, ethnic, sexual, cultural, and linguistic, inclusivity
  • accessibility and affordability

Mission Moment: Marie M. Desir, Senior Patient Care Associate (PCA) at Hebrew SeniorLife

Posted on by dcridigital

Marie M. Desir, Senior Patient Care Associate (PCA) at Hebrew SeniorLife provided this year’s mission moment for the IMPACT Collaboratory Annual Steering Committee & Business Planning Meeting, held on April 11, 2023.

Ms. Desir shared her unique experience as a frontline member of the healthcare team working with people living with dementia during the COVID-19 pandemic.

Ms. Desir provided a heartfelt description of the challenges that providers, patients, and families faced throughout the pandemic. She provided examples of how her team maintained their humor and humanity to overcome obstacles to good caregiving. Her account received a standing ovation for her inspiring mission moment.

Mission Moment: Barbara Healy, RN, MSN, Care Coordinator, MassGeneral Brigham Integrated Care Management Program

Posted on by Sonya Sutton

Barbara Healy, RN, BSN, MSN, CCM, NC-BC, Care Coordinator, MassGeneral Brigham Integrated Care Management Program provided this year’s mission moment for the IMPACT Collaboratory 3rd Annual Steering Committee & Business Planning Meeting, held on April 5, 2022.

Ms. Healy shared her unique experience in her role as nursing care manager working on the front line as a care coordinator in a pilot pragmatic clinical trial embedded within a healthcare system.

Ms. Healy provided valuable insights from the perspective of a frontline member of the healthcare team working with researchers to conducting pragmatic clinical trial among people living with dementia in real world care settings. She also shared lessons learned and themes for consideration as researchers design and implement pragmatic trials embedding in real world settings in the future.

woman standing at Grand Canyon

Mission Moment: Dr. Brenda Nicholson on Living with Dementia During COVID-19

Posted on by Sonya Sutton

woman standing at Grand CanyonBrenda Nicholson, MD, a member of the IMPACT Collaboratory Stakeholder Engagement Team Executive Committee and person living with dementia, shares her reflections on living with dementia in the context of COVID-19. Dr. Nicholson’s talk was the mission moment for the IMPACT Collaboratory Steering Committee & Business Planning Meeting on April 6, 2021.  Dr. Nicholson shares her unique experience living with dementia and provides a valuable perspective into the feelings of both people living with dementia and their care partners.

 

 

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