Health Equity

IMPACT member Ana Quiñones to participate in NIH Collaboratory annual meeting steering committee panel

Posted on by Jeannine Sato

IMPACT Health Equity Team Leader, Ana Quiñones, PhD, MS, will participate in a moderated Steering Committee panel discussion focusing on health equity entitled “Focus on Health Equity: The ePCT Landscape/Ecosystem,” as part of the NIH Pragmatic Trials Collaboratory annual meeting.

Quinones will contribute to the Steering Committee panel goals of identifying national programs and initiatives that are striving to improve health equity. The panel is expected to discuss best practices for engaging minoritized and other underrepresented communities to improve health equity and examine the impact of these initiatives and how lessons are disseminated across different stakeholder groups. The closed meeting will be held May 16, 2023.

IMPACT HET member María Aranda shares insights on caregiving planning in the New York Times

Posted on by Jeannine Sato

IMPACT Health Equity Team (HET) member María Aranda PhD, MSW, MPA, LCSW addresses the challenges of developing a caregiving plan in a recent New York Times article. “How to Make a Caregiving Plan (So It’s Ready When You Need It)” features insights from Aranda and other experts. Dr. Aranda shares tips for approaching caregiving conversations and developing a caregiving plan with aging family or friends before they need it.

In order to develop an effective caregiving plan, Aranda recommends communicating directly with those receiving care to better understand their wishes and designating multiple caregivers when possible. She suggests managing expectations and finding resources developed for caregivers.

To read the full article, visit this link.

Language barriers can mean life or death in fight against coronavirus

Posted on by Beth C

Language barriers can mean life or death in fight against coronavirus

April 23, 2020

An opinion piece in “The Hill” about how language barriers affect the outcomes of COVID-19 cases, with non-native English speakers with no or limited proficiency in the language disproportionately affected by the pandemic and dying in disproportionate numbers. Read the full article at this link.

Quiñones among presenters for GSA preconference workshop

Posted on by Sonya Sutton

Ana Quiñones, PhD, MS, Team Leader of the IMPACT Health Equity Team, will be among the presenters at the Gerontological Society of America’s preconference workshop on November 2nd.

The workshop will focus on the pragmatic clinical trial as an exemplar of an innovative research design that can foster the performance of trials in real world settings, with representative patient populations, and outcome measures that “matter most” to patients and caregivers. Leaders of funded projects will describe how they applied pragmatic trial principles in study design and implementation. The advantages and challenges of conducting pragmatic clinical trials with diverse populations of older adults, including those living with Alzheimer’s disease and Alzheimer’s disease related dementias (AD/ADRD), will be discussed.

Dr. Quiñones will discuss MCCs, Diversity, and Inclusion from 1:00 PM to 1:45 PM.

Registration is open to RCMAR Faculty and Scientists (current and alumni). Click here to read the full description and agenda.

Introduction to the Science of Recruitment and Retention Among Ethnically Diverse Populations

Posted on by Erin Luers

September 1, 2010

This paper is an introduction to a special issue of The Gerontologist journal. It provides an overview of important theoretical and conceptual frameworks that seek to address the shortcomings of previous models of recruiting diverse populations and reviews strategies for reaching out to these diverse groups.

Abstract

Recruitment and retention of research participants is evolving with the changing demographics of the American population, in particular its growing diversity. The cultural-historical background and sociopolitical conditions of each diverse group poses unique challenges in developing successful recruitment and retention methods and strategies. This critical collection of articles demonstrates important theoretical and conceptual frameworks that seek to address the shortcomings of previous models of recruiting diverse populations. Understanding the key components of cultural distinctions, such as values and beliefs, community cohesion, and collective history, has proven to be instrumental in reaching out to these diverse groups. This important strategy has allowed researchers to overcome the barriers that have been fostered in the past and has built the trust necessary to move forward into an inclusive approach to aging research. Not to be overlooked, an important factor to achieving success in recruitment and retention of diverse populations is having access to resources that allow for ongoing connection with research participants.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3106368/

Beyond diversity to inclusion: recruitment and retention of diverse groups in Alzheimer research

Posted on by Erin Luers

July 1, 2010

This paper provides a discussion on using an inclusive approach to recruitment and retention of diverse groups in Alzheimer research by framing the issues of diversity and inclusion, outlining specific inclusive strategies for researchers, providing ideas on a retooling process to prepare researchers to use inclusive approaches.

Abstract

This article provides a discussion on using an inclusive approach to recruitment and retention of diverse groups in Alzheimer research. The discussion begins by framing the issues of diversity and inclusion and reviewing some of the conceptual and theoretical frameworks that can help researchers develop an inclusive approach to research. Next, some specific inclusive strategies that the researchers can use to recruit and retain diverse samples are discussed. Last, ideas on a retooling process that can prepare researchers to use inclusive approaches are discussed. Ultimately, an inclusive approach to recruitment and retention goes beyond diversity and instead, emphasizes shared interest and representation by researchers and participants in the research process.

Read the full article at this link.