Unroe receives $15.5 million NIH award to develop a national network to include nursing home residents in clinical trials

Congratulations to IMPACT Associate Pilot Core Leader, Kathleen Unroe, MD, MHA, MS, of IU School of Medicine and Regenstrief Institute and team on recent 5-year award from the National Institutes of Health to develop NEXT STEPs (Nursing Home EXplanatory Clinical Trials: Supporting Transformation by Enhancing Partnerships), an innovative national nursing home clinical trials network.

Researcher-clinicians from the IU School of Medicine and Regenstrief will lead the initiative to increase nursing home resident participation in clinical trials by removing barriers to participation and creating a more inclusive approach.

Dr. Unroe is the principal investigator of the initiative which includes research sites in nine states and collaborative work with multiple institutions including:

  • Regenstrief Institute, Inc.
  • Brown University
  • University of Maryland, Baltimore
  • University of Utah
  • Hebrew Rehabilitation Center
  • The Regents of University of California, Los Angeles (UCLA)
  • University of Colorado Denver in the amount
  • Institute for Healthcare Improvement
  • Rhode Island Hospital
  • University of North Carolina at Chapel Hill
  • Duke University
  • New York University

Learn more about this groundbreaking new initiative at https://www.regenstrief.org/article/award-funds-network-to-include-nursing-home-residents-in-clinical-trials/

 

Bynum and team publish findings from research into geographic disparities in Alzheimer’s disease diagnosis

Congratulations to Julie Bynum, MD, MPH from the University of Michigan‘s Institute for Healthcare Policy and Innovation and the team for their newest research findings reflecting the disparities in Alzheimer’s disease diagnosis based on geographic location!

Highlights from the research:

  • The rate of new Alzheimer’s disease and related dementias (ADRD) case identification varies geographically across the United States.
  • Variation in case identification is greatest in Black, Hispanic, and young-old groups.
  • Intensity of diagnosis (i.e., case identification) unrelated to population risk differs across place.
  • Likelihood of receiving an ADRD diagnosis varies 2-fold based on place of residence.

Read the full article to learn more about their insightful findings: https://doi.org/10.1002/alz.14092

The Long-Term Care Data Cooperative is launching a new series of informational workshops for researchers!

This session will be led by Elizabeth White, APRN, PhD, Assistant Professor at Brown University School of Public Health, and Stephanie Kissam, Executive Director of the LTC Data Cooperative from the University of Michigan School of Public Health.

Governed by the AHCA/NCAL and funded by the National Institute on Aging (NIA), the LTC Data Cooperative, provides free access to person-level electronic medical records (EMR) data from thousands of skilled nursing facilities and assisted living buildings. This data, linkable to Medicare and Medicaid claims through the NIA LINKAGE Program, is a powerful new resource for post-acute and long-term care research.

This interactive session is a great opportunity to learn how the LTC Data Cooperative can support your research projects. Register now at https://bit.ly/4cVD8u7!

Join members for the first session on:
Thursday, September 19, 2024
1:30 PM ET

Join the interactive session to:

  • Discover how to leverage the LTC Data Cooperative for your research
  • Understand the application process
  • Explore the types of studies suitable for these datasets
  • Get your questions answered