Call for Nominations to Serve on the Lived Experience Panel for People Living with Dementia and Their Family Members and Care Partners

The NIA IMPACT Collaboratory, in collaboration with the Alzheimer’s Association, is seeking nominations to establish a Lived Experience Panel. We are looking for people living with dementia  and those caring for people with dementia to share experiences to help inform the development and testing of interventions to improve dementia care. It is critical to include personal experiences of those living with dementia and care partners to help researchers, professionals, and other stakeholders better understand and prioritize the most urgent needs. Lived Experience Panel will meet quarterly to engage in discussions about methods and strategies for studying non-medication interventions and provide feedback to researchers to improve the quality of life of people living with dementia, their family members, and care partners.

A one-year commitment is requested. Participation will include:

1) training regarding the goals of the Lived Experience Panel

2) four 90-minute meetings (one every 3 months)

3) review of pre-meeting materials

4) evaluation of each meeting soon after it has completed. Meetings will take place over video and/or conference calls

Please share this opportunity with individuals you believe might be good candidates for this panel. To learn more, please visit the Lived Experience Panel page, the Frequently-Asked-Questions and complete the Nomination Form (self-nominations welcome).

Nominations are due by November 17, 2020. 

Health equity as foundational to the design of pragmatic trials

April 2020 – In Grand Rounds 5, Drs. Quiñones and Jackson discuss health equity issues have not yet been fully considered, assessed, or integrated into ePCT designs. Health disparities populations may not be well represented in ePCTs without special efforts to identify and successfully recruit sites of care that serve larger numbers of these populations.

 

Speakers

Ana Quiñones, PhD, MS

Ana Quiñones, PhD, MS

Team Leader, Health Equity Team (HET)

Associate Professor, Department of Family Medicine, OHSU-PSU School of Public Health, Oregon Health & Science University

Jonathan Jackson, PhD

Jonathan Jackson, PhD
Executive Committee, Health Equity Team (HET)

Instructor in Neurology, Massachusetts General Hospital
Instructor, Harvard Medical School

Learning Objectives

  • Understand the role and objectives of the Health Equity Team in the IMPACT Collaboratory.
  • Describe the conceptualization of health equity as it relates to ePCTs design.
  • Understand and describe important health equity considerations in the design of ePCTs.