Selecting Outcomes to Ensure Pragmatic Trials Are Relevant to People Living with Dementia
June 26, 2020
Resource Type
Finding Pragmatic and Relevant Outcomes for AD/ADRD ePCTs
June 2020 – Grand Rounds 7, members of IMPACT's Patient Caregiver Relevant Outcomes Core describe person and caregiver-centered outcome measurement in AD/ADRD ePCTs, give an overview of how outcomes are mapped to care domains, and highlight the methodological challenges present in AD/ADRD and pragmatic research.
Speakers
Laura C. Hanson, MD, MPH
Core Leader, Patient/Caregiver Relevant Outcomes Core
Member, Steering Committee
Professor, Division of Geriatric Medicine
Director, UNC Palliative Care Program
University of North Carolina School of Medicine
Sheryl Zimmerman, PhD
Executive Committee, Patient/Caregiver Relevant Outcomes (PCRO) Core
University Distinguished Professor and Co-Director, Program on Aging, Disability, and Long-Term Care, Cecil G. Sheps Center for Health Services Research
University of North Carolina at Chapel Hill
Learning Objectives
- Describe outcomes relevant for people living with dementia and their caregivers
- Describe the application of the Alzheimer’s Association conceptual framework to link care interventions to outcomes
- Describe considerations for selecting outcome measures for AD/ADRD ePCTs