Advanced Dementia: Research Informing Practice

Advanced Dementia: Research Informing Practice

Slides from Dr. Susan Mitchell’s presentation at the National Academy of Medicine (NAM) Decadal Survey of Behavioral and Social Science Research on Alzheimer’s Disease and Alzheimer’s Disease-Related Dementias Workshop 3 on “Nursing Home, Hospice, and Palliative Care for Individuals with Later-Stage Dementia: Making Health Systems More Responsive to Dementia.” You can view the full slide deck here.

Dementia as Disparity: Access to High Quality Long term Care in America

Dementia as Disparity: Access to High Quality Long term Care in America

Slides from Dr. Vince Mor’s presentation at the National Academy of Medicine (NAM) Decadal Survey of Behavioral and Social Science Research on Alzheimer’s Disease and Alzheimer’s Disease-Related Dementias Workshop 3 on “Nursing Home, Hospice, and Palliative Care for Individuals with Later-Stage Dementia: Making Health Systems More Responsive to Dementia.” You can view the slide deck here.

Advance Care Planning During a Crisis: Key Information for Nursing Facility Staff

Advance Care Planning During a Crisis: Key Information for Nursing Facility Staff

April 2, 2020

A video for advance care planning for nursing home residents during the COVID-19 pandemic. This is an excellent resource from the Indiana University Center for Aging Research, Regenstrief Institute for people living with dementia (PLWD) and their caregivers in this setting during the COVID-19 crisis, and a reminder about the importance of advance care planning. Watch the video here.

Is Learning Worth the Trouble? — Improving Health Care System Participation in Embedded Research

Is Learning Worth the Trouble? — Improving Health Care System Participation in Embedded Research

July 1, 2021

A paper about the importance of embedded pragmatic clinical trials (ePCTs) in generating real-world evidence without the limitations associated with observational studies or the time, expense, and lack of generalizability that are barriers to conducting conventional randomized clinical trials. The authors’ experience working in the coordinating center of the National Institutes of Health (NIH) Health Care Systems Research Collaboratory has demonstrated the feasibility of conducting innovative multicenter ePCTs for various conditions. Read the full article here.

Mor: Time to rethink U.S. nursing home landscape

Mor: Time to rethink U.S. nursing home landscape

May 17, 2021

A paper highlighting Dr. Vince Mor’s perspective on the notion of separating post-acute care from residential, long-term care. Mor believes combining long-term and post-acute care services in large, shared settings may have run its course, a viewpoint he says is supported by research into COVID-19’s rapid spread in skilled nursing facilities. Read the full article here.