The Dementia DataHub (R01 AG075730), created by NORC at the University of Chicago, provides interactive dashboards and maps to view dementia diagnoses among Medicare beneficiaries, with results available at the national, state, and county levels. NORC Dementia DataHub uses the term “dementia” to refer broadly to Alzheimer’s disease dementia and Alzheimer’s disease related dementias (AD/ADRD) and other diagnoses that are sometimes used to indicate these conditions.
Members of the IMPACT Collaboratory Design and Statistics Core recently contributed to a curated list of statistical analysis programs for biostatisticians engaged in studies of human aging.
Heather Allore, PhD, and Joan Monin, PhD, MS and colleagues authored the Analyzing Dyad Data with Additional Clustering resource in GRASP, an online resource developed by the Claude D. Pepper Older Americans Independence Centers at Yale University, Duke University and Wake Forest University. The program provides a brief introduction and overview of approaches to dyadic analysis with references as well as two approaches to performing dyadic analysis when dyads are nested in a higher level of clustering, such as dyads participating in cluster-randomized clinical trials.
ADORE is the NIA repository of resources to support the recruitment and retention of participants into clinical trials and studies on Alzheimer’s disease and related dementias.
LTCfocus.org provides data on nursing home care in the US. Their goal is to allow researchers to trace relationships between state policies, local market forces, and the quality of long-term care, enabling policymakers to craft state and local guidelines that promote high-quality, cost-effective, equitable care for older Americans.
The Clin-STAR (Clinician–Scientists Transdisciplinary Aging Research Coordinating Center) Initiative aims to connect and support the development of clinician-scientists across a variety of disciplines in order to expand aging research that focuses on improving the health, independence, and well-being of older adults. To facilitate these goals, Clin-STAR provides funding, mentorship, and resources for clinician-scientists at all careers levels across a variety of disciplines. They also host the Clin-STAR database, a discovery tool that enables research collaboration and networking among members.
Best Practice Caregiving is a free online database of proven dementia programs for family caregivers. It offers a searchable, interactive, national database of vetted, effective programs that offer much-needed information and support. The database is an invaluable tool for healthcare and community-based organizations, as well as funders and policy makers to discover and share high quality programs for caregivers.
The NIH Pragmatic Trials Collaboratory aims to improve the way clinical trials are conducted by creating a new infrastructure for collaborative research with healthcare systems, ultimately ensuring that healthcare providers and patients can make decisions based on the best available clinical evidence. The Collaboratory supports the design and rapid execution of pragmatic clinical trial Demonstration Projects to address questions of major public health importance and engage healthcare delivery systems in research partnerships. The Collaboratory also provides training resources on how to design, conduct, and disseminate embedded pragmatic clinical trials (ePCTs).
LTCFocus.org provides data on nursing home care in the US. Their goal is to allow researchers to trace relationships between state policies, local market forces, and the quality of long-term care, enabling policymakers to craft state and local guidelines that promote high-quality, cost-effective, equitable care for older Americans.
