Julie Bynum, MD, MPH, Core Leader of the IMPACT Technical Data Core and Thomas Travison, PhD, Associate Core Leader of the Design and Statistics Core, presented at the National Institute on Aging Summit Virtual Meeting Series: 2020 National Research Summit on Care, Services, and Supports for Persons with Dementia and Their Caregiver this summer. The slides and presentation videos are now available at: https://bit.ly/3nreloY.
Technical Data
Not all approaches to data are equal: Data-related challenges for pragmatic trials involving PLWD
September 2020 – In Grand Rounds 9, Members of IMPACT's Technical Data Core (TDC) discuss how data algorithms from electronic health records (EHRs) are used to identify, characterize and capture relevant health outcomes of people living with dementia (PLWD) and their care partners.
Speakers
Executive Committee, Technical Data Core
Professor and Vice Chair of Medical Informatics and Clinical Epidemiology
Professor of Medicine, Division of General Internal Medicine and Geriatrics
Chief Research Information Officer, Biomedical Informatics Graduate Program, Oregon Health & Science University School of Medicine
Executive Committee, Technical Data Core
Assistant Professor of Learning Health Sciences, University of Michigan
Learning Objectives
- Understand key data-related steps involved in designing pragmatic trials and trade-offs
- Identify data-driven approaches to identify people living with dementia and caregivers - focus on EHR
- Identify challenges in validating approaches in different healthcare settings
Podcast
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Podcast Transcript: Download the podcast transcript.
Podcast Transcript: Download the podcast transcript.
Using a Pilot to Test and Refine Your Measurement Strategy
January 2020 – In Grand Rounds 3, Dr. McCreedy presents a case example to describe how a pilot can be used to test the adequacy of existing data for evaluating an ePCT outcome. Dr. McCreedy also describes a potentially efficient ePCT design that accommodates under-detection in existing data while maintaining large-scale implementation and evaluation.
Learning Objectives
- Describe how a pilot study can be used to test the adequacy of existing data sources for the purposes of evaluating your ePCT.
- Give three reasons why existing administrative data may suffer from under-detection of behaviors in persons with dementia.
- Discuss an alternative ePCT design that addresses potential under-detection in existing administrative data sources.
Podcast
Podcast Transcript: Download the transcript here.
Related Articles and Resources
McCreedy EM, Yang X, Baier RR, Rudolph JL, Thomas KS, Mor V. Measuring effects of nondrug interventions on behaviors: music & memory pilot study. Journal of the American Geriatrics Society. 2019 Oct;67(10):2134-8.