feature_col_two

Embedding Health Equity in a Cluster Randomized Trial of an Advance Care Planning Intervention

Posted on by Sonya Sutton

April 2022 – In Grand Rounds 26, Kimberly S. Johnson, MD, professor of medicine and director of the Duke Center for Research to Advance Healthcare Equity at Duke Health, shares her experience in leading an embedded pragmatic clinical trial focused on health equity in advance care planning.

Speaker

 

Kimberly S. Johnson, MD

Professor of Medicine

Director of the Duke Center for Research to Advance Healthcare Equity, Duke Health

                        Download webinar slides

Learning Objectives

  • Describe current gaps and challenges in equitable conduct and reporting of research findings.
  • Describe strategies to promote diversity, equity, and inclusion throughout the research process.
  • Identify at least one opportunity to embed processes to increase enrollment of underrepresented populations in your work and promote equitable access to your research studies.

Healthcare-Generated Data to Identify People Living with Dementia for Embedded Pragmatic Trials

Posted on by Sonya Sutton

January 2022 – In Grand Rounds 23, Dr. Bynum describes the use of data to identify people living with dementia as well as strengths, challenges and potential equity gaps when using a healthcare-generated data approach in pragmatic clinical trials.

Speaker

Julie Bynum, MD, MPH

Margaret Terpenning Professor of Medicine

University of Michigan

                     Download webinar slides

Learning Objectives

  • Understand the use of data to achieve pragmatic study aims
  • Identify strengths & challenges when use Healthcare-generated data (billing or electronic health record data) for participant identification
  • Identify threats to Health Equity and Generalizability related to choices about data use.

 

Podcast


Podcast Transcript: Download the transcript here.

Partnering with People Living with Dementia and Care Partners in Embedded Pragmatic Clinical Trials

Posted on by Sonya Sutton

December 2021 – Grand Rounds 22 features a panel of participants sharing their experiences in stakeholder engagement in ePCTs for people living with AD/ADRD and their care partners. Perspectives shared include that of a researcher, a stakeholder engagement expert and people living with dementia.

Download Webinar Slides

Speakers

Gary Epstein-Lubow, MD
Team Leader, IMPACT Engaging Partners Team
Associate Professor of Psychiatry and Human Behavior
Associate Professor of Medical Science, Alpert Medical School of Brown University
Associate Professor of Health Services, Policy and Practice, Brown University School of Public Health

 


Heidi GilHeidi Gil
Executive Committee Member, IMPACT Engaging Partners Team
Chief Strategy Officer, LiveWell Alliance, Inc.

Learning Objectives

    • Understand the need/benefits of engaging people living with dementia and care partners in every aspect of dementia care research
    • Identify how all stakeholders can be empowered and engaged as co-partners in research
    • Explore lessons learned and resources available to conduct research differently

Podcast

 

Podcast Transcript: Download the transcript here.

Challenges conducting pragmatic trials of interventions for care partners of people living with dementia

Posted on by Sonya Sutton

November 2021 – In Grand Rounds 21, Drs. Penfold, Hanson, and Fortinsky, describe challenges from three pragmatic trials to share lessons learned and ideas for how to overcome these challenges in future research.

Webinar Slides

 

 

 

 

 

Robert Penfold, PhD
Senior Investigator, Kaiser Permanente
Washington Health Research Institute

 

 

 

 

 

 

Leah Hanson, PhD
Senior Research Investigator,
Health Partners Institute

 

 

 

 

 

 

Richard H. Fortinsky, PhD
Professor and Health Net, Inc. Endowed Chair in Geriatrics and Gerontology
UConn Center on Aging

Learning Objectives

  • Be familiar with some legal, ethical and logistical barriers to recruiting caregivers and measuring caregiver outcomes
  • To gain knowledge about the potential for mindfulness to reduce stress and depressive symptoms in care partners
  • Explain how issues involving consent and HIPAA authorization could be addressed and resolved during the IRB approval process in pragmatic trials compared to more conventional clinical trials.

Podcast

S
Podcast Transcript: Download the transcript here.

Dyadic designs, their foundation on theory and analytic methods

Posted on by Sonya Sutton

October 2021 – In Grand Rounds 20, Dr. Lyons explains a dyadic approach to illness and care, as well as the role of theory and concepts, design and methodological considerations, and family and culture in dyadic research.

 

Speakers

Karen S. Lyons, PhD, FGSA (she/hers)

Professor

Boston College
William F. Connell School of Nursing
@KSLCareDyads


Download Webinar Slides

Learning Objectives

  • Understand what is meant by “dyad as unit of analysis or focus.”
  • Understand the importance of theory and concepts as foundations to dyadic research.
  • Understand some of the design and methodological considerations in designing and conducting dyadic research.

 

Podcast

 

Podcast Transcript: Download the transcript here.

Challenges Implementing Innovative Programs in Long Term Care: Examples from Pragmatic Trials

Posted on by Sonya Sutton

September 2021 – In Grand Rounds 19, Dr. Mor discusses the complexities of making changes in health care systems through four examples of embedded pragmatic clinical trials.

 

Speaker

Vincent Mor, PhD
Florence Grant Pirce Professor of Community Health
Brown University School of Public Health

                     Download Webinar Slides

Learning Objectives

  • Understand the complexities of Making Changes in Health Care Systems
  • Understand the kinds of Implementation Challenges that arise in conducting ePCTs in nursing homes
  • Understand the Implications of how difficult it is to Change Care Practices to improve Dementia care

Podcast

 

Podcast Transcript: Download the transcript here.

Podcast 14: Ethical challenges with pragmatic RCTs: General issues and special considerations in dementia

Posted on by Sonya Sutton

link to brody profileStuart Nicholls, PhD, from the Clinical Epidemiology Program at the Ottawa Hospital Research Institute, continues the discussion from his February 18 Grand Rounds presentation. This discussion with IMPACT Principal Investigator Susan Mitchell, MD, MPH answers questions from Dr. Nicholls's presentation on giving an overview of ethical issues raised by pragmatic randomized controlled trials (RCTs) and which derive from ongoing work to develop guidance for those designing and conducting pragmatic RCTs.

 

 

Want to hear more? View the full Grand Rounds presentation.

For alerts about new episodes, subscribe free on iTunes or SoundCloud.

Ethical challenges with pragmatic RCTs: General issues and special considerations in dementia

Posted on by Sonya Sutton

February 2021 – In Grand Rounds 14, Dr. Nicholls provides an overview of ethical issues raised by pragmatic randomized controlled trials (RCTs), outlines challenges in conducting empirical studies of the published literature, and provides preliminary data on the reporting of key ethical issues in published pragmatic RCTs in AD/ADRD.

Speaker

Stuart G. Nicholls, PhD
Ottawa Health Research Institute

Watch the Webinar

Webinar Slides

Learning Objectives

  • Describe key ethical issues raised by pragmatic RCTs and which may be particularly salient to the ADRD context
  • Describe the challenges of identifying a sample of pragmatic RCTs from the literature
  • Describe the landscape of key ethical issues in published pragmatic RCTs in ADRD

Podcast

Implementation in ongoing ADRD ePCTS in different health care settings using real examples

Posted on by Sonya Sutton

January 2021 – Ground Rounds 13, features Drs. Brody, McCreedy, and Colburn providing examples of ongoing implementation of ePCTs within health care systems for people with AD/ADRD followed by a response from Dr. Mittman, a prominent scientist with expertise in implementation of complex interventions in health care systems.

Webinar Slides

Webinar Recording

Ab Brody, PhD, RN, FAAN

Core Leader, Pilot Studies Core
Member, Steering Committee

Associate Professor of Nursing and Medicine, New York University Rory Meyers College of Nursing
Associate Director, Hartford Institute for Geriatric Nursing
Founder, Aliviado Health

Ellen McCreedy, PhD, MPH

Executive Committee, Technical Data Core

Assistant Professor, Brown University School of Public Health

Jessica Colburn, MD

Johns Hopkins University School of Medicine

Implementation Workgroup Lead

 

Learning Objectives

  • Understand the implementation strategies used in 3 pragmatic clinical trials among persons living with dementia
  • Gain knowledge about implementation barriers and facilitators of complex interventions in pragmatic trials
  • Apply a novel framework to promote complex health intervention implementation in health care systems

 

Podcast

Grand Rounds 12- December 2020

Improving Serious Illness Care Through Large Pragmatic Trials

Posted on by Sonya Sutton

December 2020 – In Grand Rounds 12, Dr. Halpern discusses improving care through large pragmatic trials. Dr. Halpern reviews explanatory trials in serious illness care, informed consent, and many other approaches of pragmatic clinical trials to improve the palliative care for seriously ill, hospitalized patients.

Webinar Slides

Speaker

Scott Halpern, MD, PhD

Member, Steering Committee

Professor of Medicine, Epidemiology, and Medical Ethics and Health Policy,
University of Pennsylvania

Webinar Recording

Learning Objectives

  • Participants will understand the importance of improving serious illness care and how it can be done through large pragmatic trials
  • Participants will understand the use of explanatory trials in serious illness care
  • Participants will understand how pragmatic trials can improve palliative care for hospitalized patients

Podcast