IMPACT members publish two articles on best practices for health equity in pragmatic trials in Ethnicity & Disease special report

IMPACT members Rafael Samper-Ternent, MD, PhD and Susan Mitchell, MD, MPH are primary authors in the recently published Original Report: Pragmatic Trials Among Older Adults by the publication Ethnicity & Disease. The articles provide best practices for health equity in embedded pragmatic clinical trials(ePCTs) for dementia care.

Considerations When Designing and Implementing Pragmatic Clinical Trials That Include Older Hispanics by Dr. Samper-Ternent, IMPACT Pilot Study awardee, Aanand D. Naik, MD and others describes health equity practices for older Hispanic adults with Alzheimer disease and related dementias (ADRDs). The authors provide data from two PCTs about the recruitment of older Hispanics with ADRDs and discuss unique challenges associated with conducting PCTs and propose strategies to overcome challenges.

Best Practice Recommendations for Integrating Health Equity into Pragmatic Clinical Trials for Dementia Care by IMPACT’s Susan Mitchell, MD, MPH, Ellen McCarthy, PhD, MPH, Ladson Hinton, MD, Ana Quiñones, PhD, Katherine Peak, MPH, and IMPACT faculty scholar Manka Nkimbeng, PhD, MPH, RN, describes the development, structure, and content of a guidance document developed by the IMPACT Collaboratory to help investigators integrate health equity into all aspects of ePCTs designed for people living with dementia.

 

New IMPACT Guidance Document – Guidance for Proxy Data and Dyadic Analysis

A new guidance document from IMPACT’s Design and Statistics Core describes essential considerations for using dyadic data and analysis in research with people living with dementia and their care partners.

The guidance document by Katie Newkirk, PhD, and Joan Monin, PhD, MS, defines dyadic data, how it differs from proxy data, and the information that can be gained by collecting and analyzing dyadic data compared to proxy data when conducting research that includes people living with dementia and care partners.

View the document here.