Guidance for Proxy Data and Dyadic Analysis

May 17, 2024

Authors: Katie Newkirk, PhD and Joan Monin, PhD

Description: This document provides guidance on what dyadic data is, how it is different from proxy data, and what information can be gained by collecting and analyzing dyadic data compared to proxy data when conducting embedded pragmatic clinical trials (ePCTs) that include people living with dementia and care partners. Topic covered:

  • Dyadic Data
  • Proxy Data
  • Constructs Often Measured for Both People Living with Dementia and Care Partners
  • Analyzing Dyadic Data
  • When Data Don’t Require Dyadic Analysis
  • Proxy Data
  • Do I Have Dyadic Data?
Citation: Newkirk K, Monin J. Guidance for Proxy Data and Dyadic Analysis. NIA IMPACT Collaboratory; 2024. doi: 10.58234/236781742
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IMPACT authors publish commentary on medical therapies in nursing homes

IMPACT members Kathleen Unroe, MD, MHA, MS, Debra Saliba, MD, MPH, Sheryl Zimmerman, PhD and Jerry Gurwitz, MD, contribute commentary in the Journal of the American Geriatrics Society citing IMPACT and the Long Term Data Cooperative as National Institute on Aging (NIA) initiatives that provide foundational work addressing the identification and capture of important clinical outcomes, laying the groundwork for a nursing home clinical trials network. The commentary is based on the article Evaluation of medical therapies in the nursing home population: Gaps, challenges, and next steps.

Read the full commentary.

IMPACT’s Harrison and McCreedy, receive Brown School of Public Health Dean’s Awards in honor of research excellence

Congratulations to IMPACT  executive director Jill Harrison, PhD, and executive committee member Ellen McCreedy, PhD, MPH, for receiving Brown University’s School of Public Health Dean’s Awards for Excellence in Research.

As executive director, Harrison orchestrates and participates in research collaboration with researchers and people impacted by dementia across the U.S. She received the Dean’s Award for Excellence in Collaboration.

McCreedy received the Dean’s Award for Excellence in Community Engagement. She partners with healthcare providers and entrepreneurs in the co-design and conduct of pilots and pragmatic trials of behavioral interventions to improve care for people with dementia.

Hanson will assist new Science Advisor at American Academy of Hospice and Palliative Medicine

IMPACT’s Laura Hanson MD, MPH, Professor of Medicine at The University of North Carolina at Chapel Hill, will assist Stacy Fisher, MD, who was recently selected as the new Scientific Advisor of The American Academy of Hospice and Palliative Medicine (AAHPM). The positions will guide AAHPM’s efforts to advance research in hospice and palliative care and deepen its relationships with key partners in the field. In addition to research goals, the Scientific Advisor will support researcher mentoring, training and career development.

Read the announcement.

IMPACT members share pandemic-era nursing home dementia care findings in JAGS article

 IMPACT members Kathleen Unroe, MD, MHA, MS and Health Care Systems Scholar Gail Towsley, PhD, MS, NHA published an article  in the Journal of the American Geriatrics Society (JAGS). The editorial article, Learning from the experience of dementia care for nursing home residents during the pandemic, comments on an article by Gadbois et al, about nursing home care during the COVID pandemic. Unroe and Towsley comment on issues including the need for dementia care specific staff training, the value of telehealth communication, and the particular importance of expanding family roles in nursing home care. The authors describe the creation of the Moving Forward Nursing Home Quality Coalition as a response to pandemic-era policies which prevented family members from visiting nursing home residents to limit COVID transmission

Read the full article.

PR Newswire announces Joseph E. Gaugler, Ph.D to be honored as the 2024 Distinguished Ambassador in Aging by the Aging Life Care Association®

PR Newswire distributed a press release announcing that Joseph E. Gaugler, PhD will be honored as the 2024 Distinguished Ambassador in Aging by the Aging Life Care Association®.

Dr. Gaugler will be recognized following his keynote address “Alzheimer’s Disease Update: Testing, Treatment and Teamwork” on April 18 at the Royal Sonesta Downtown during the association’s 40th annual conference in Minneapolis, MN on April 18.

Read the full press release.